Comments on: Biopsy Testing For Celiac Disease Completely Flawed!

By: Peter Osborne

Peter Osborne — Tue, 13 Aug 2019 22:36:15 +0000

In reply to Ben.

Ben,
It is not typical. Unfortunately, the gold standard of care for celiac diagnosis is biopsy. Doctors are not likely to make a diagnosis of celiac disease without one. Your best bet would be a pediatrician who will listen and take a proactive stance.
All the best,
Dr. O

By: Ben

Ben — Tue, 13 Aug 2019 03:26:15 +0000

We’re looking for a doctor who will diagnose Celiac based on overwhelmingly positive blood results. There is no need for biopsy in this circumstance. Any referrals?

By: Michelle

Michelle — Fri, 17 Nov 2017 20:28:44 +0000

Hello, I have been with joint pain for many, many years. After doing testing a year ago I found out I was allergic to dairy. That solved my eczema, constipation, stomach pain, acid reflux and some allergy symptoms. However, my joint pain did not get any better. Some of my blood work revealed red flags and was told to do an Upper GI. My blood work while on gluten was IGA 253 and Tissue Transglutaminase Antiobody IgA was 43.
The GI came back negative for Celiac and was told not to worry about being gluten free. I then went to see a Rheumatologist that specialized in auto immune diseases. He questioned the slightly higher blood work. I went gluten free for 7 weeks and Gliadin Antibody IgG was 23 units and Gliadin Antitbody IgG , deaminated was 7 units. He said that something doesn’t seem right but was not sure. He said to see a GI…he only specialized in autoimmune. I was a bit confused as I though Celiac was an autoimmune disease. So neither Dr. have given me any answers. I am wondering if I should be gluten free and how serious I should be on the diet. Are there other types of Dr. that are more knowledgeable?

By: Peter Osborne

Peter Osborne — Thu, 01 Jun 2017 16:31:30 +0000

In reply to Jennie. Jennie, The traditional testing for celiac disease is often inaccurate. Here is an article on that topic. If you strongly suspect a gluten sensitivity I would highly recommend changing your diet. 1. Check out this page. It contains a list of gluten and the hidden terms commonly used for gluten on food labels. 2. Follow the 30 diet protocol in No Grain No Pain. Let me know how you do. All the best, Dr. Osborne

By: Jennie

Jennie — Wed, 24 May 2017 08:45:48 +0000

I have been very sick (mostly unable to do day to day things) for 2 years. Been to several doctors and no one knows what’s wrong with me. Because of this, I decided to have genetic testing done. It says that I do have the Celiac marker. I went to my doctor with this information and she informed me that I had had a biopsy done for Celiac 10 years ago and it was nagarive. She said that in no way do I have it due to that test. (They hadn’t told me they were testing it during my scopes). So I continued eating gluten. I recently developed brown at the bottom of some of my teeth. I googled and it said it’s a common symptom of Celiac. Could my negative results have possibly changed? I have almost every single symptom of Celiac.

By: Tina Williams

Tina Williams — Thu, 16 Mar 2017 22:57:59 +0000

Fructans*

Excuse the spelling mistakes above. Autocorrect.

By: Mary

Mary — Thu, 04 Feb 2016 16:51:28 +0000

In reply to Kerry. I feel like that a lot just hang in there and become your doctor really. I'm not saying self diogonise yourself that is foolish but get to know why is happening and why better come up with theories an ficus them with your doctor I wish for all the best for your daughter.

By: Mary

Mary — Thu, 04 Feb 2016 16:47:19 +0000

In reply to Kerry. I'm 13 I have the common symptoms as well some unusual ones (like asthma that isn't helped with ventlin) my doctor says this could all be celiac. My Nana has celiac disease and my Mum is defiantly gluten sensitive but might not have celiac she hasn't been tested yet. My blood test came back negitive so I'm having an edsocopy and biopsy tomorrow, I know the biopsy isn't that reliable but neither is the blood test a test can never be 100% accurate. I suggest do your own research and go get referred if you can the general doctors sometimes have no clue with the unusual cases. At least I have become a bit of a biology nerd from this!

By: janice

janice — Mon, 02 Jan 2012 00:28:03 +0000

About a year ago, I tested slightly high for antibodies, had a negative biopsy and extremely high risk of celiac disease on Prometheus gene test. I had been diagnosed throughout the years with IBS but nothing I tried made my symptoms any better. My new gastroenterologist was the one who suggested I get tested for celiac disease, and even though my biopsy was negative and my antibodies weren’t through the roof although not normal, after my gastro saw the results of the gene test, she told me to just assume I have gluten intolerance and stop eating gluten. Because I felt so much better after going gluten free, I have followed her advice for over a year and could never go back to eating gluten. I don’t have any problems with corn or gluten free bread or pasta. The only time I have a reaction is when I eat yogurt with gluten free granola, but it’s not really too bad and nothing like when I used to eat something like turkey on rye for lunch. Anyone who feels better eating gluten free should just eat gluten free. Simple as that. Don’t let old-fashioned thinking from doctors dissuade you from feeling better.

By: Richard Stansfield

Richard Stansfield — Thu, 14 Jul 2011 08:12:23 +0000

My blood tests and biopsy were negative but self impossed a gluten diet, which stopped all the bloating and pain caused by being bloated and have been relatively fine since. However, I would occasionally have a day or two where I would get bloated and then it would go again? I realised that it was happening after I had eated some gluten free bread, normally on a Saturday morning in the form of a bacon butty. I have since cut all bread from my diet, including GF and have been fine ever since. I had previously noticed that yeast extract (marmite etc) was upsetting my guts and had excluded that at the start of my self imposed diet and strongly believe that it has something to do with the Yeast, which is why GF bread was still causing me problems.